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Idiopathic Subglottal Stenosis

Ear, Nose & Throat (ENT) | Last Active: Oct 17, 2023 | Replies (28)
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@monarowan

Hi
Thank you for getting back to me. I’m in Boston, but there is no way on earth I’m having a tracheostomy after seeing videos the way people live with it. I contacted the Mayo Clinic and other opinions to avoid this mess. It’s ruining my life and that’s all I think about.
Good luck and thank you,
Mona

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Replies to "Hi Thank you for getting back to me. I’m in Boston, but there is no way..."
jpuntasecca | @jpuntasecca | Mar 10, 2023

Mona, I’m so glad you’re seeking other opinions. It is a huge decision as it is life changing. My surgeon is Eric Genden at Mt Sinai in NY in case you’d like to research him. He performed the first trachea transplant. You can google his name along with tracheal transplant and a New York Times article should pop up. Good luck to you! - Janice

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