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Does anyone else have MGUS?

Blood Cancers & Disorders | Last Active: Sep 19 12:31pm | Replies (818)
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@psue4

My daughter was just diagnosed with MGUS. Her specialist that are treating her said she had protein in her blood which they were keeping an eye on. She did bone marrow test and scan and slight blood appeared in bone marrow. They wanted to see her back in 3 months to keep an eye on progression. We went for a second opinion at one of our University hospitals and they suggested aggressive treatment so it didn't progress. So many medicines and so much stress. Should I worry so much?

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Ginger, Volunteer Mentor | @gingerw | Mar 9, 2023

@psue4 Welcome to Mayo Clinic Connect. As you read through the posts here, you will find that many people may be diagnosed with MGUS, but the vast majority live for a long time without any advancement of the disease into smoldering myeloma or beyond. In general, it is a "watch and wait" situation, with labwork every three to six months, following the results.

I am curious what aggressive treatment may have been suggested at the University hospital, and the reasons they gave for it?

Here is what Mayo Clinic has to say about MGUS: https://www.mayoclinic.org/diseases-conditions/mgus/symptoms-causes/syc-20352362
Ginger

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