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@rwinney

Hello @rjjacobsen. I see why you posted because of pain management, or lack thereof. How frustrating. I'm so sorry for what you've been through.

Outside of the tradition meds that you've tried or are using that are no longer working, what self-care or self-help tools do you use? It's a sad space when you get to wanting pain relief that may not be able to be provided. Good for you for not going the opioid route. Unfortunately I did, and it back fired by actually intensifying symptoms. I know nothing of what you've been through with cancer, but I live with a chronic pain and sensory disorder and hit that dead end with traditional pain management myself.

Things like mindfulness, meditation, diaphragmatic breathing , gentle exercise and finding gratitude are tools I use to help me get through challenging days. Would you say you are an active participant in your pain-management care? Have you found any self- help tools that you can lean into?

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Replies to "Hello @rjjacobsen. I see why you posted because of pain management, or lack thereof. How frustrating...."

Thanks for your reply.

What has helped for me is being a person of faith and thus knowing there is a higher purpose for what I've experienced. Second, recognizing my limitations so that I don't hit a trigger point. Third, doing what I can to ensure good quality/duration of sleep. Fourth, addressing the non-FM causes of pain - injury, arthritis, etc. Last - walking for exercise and daily stretching help as well.

I do not have anyone actively addressing my pain management at this time. FM is a recent diagnosis. I have a surgery coming to fix a torn labrum and clear out arthritis in one shoulder. Recently had a steroid injection in one hip - pain due to arthritis and a labrum tear.

The pain management for the FM has had to be a lower priority than getting those really painful "hot spots" handled since most of the time the pain is tolerable.