← Return to 7% Saline in Nebulizer for Mac
Discussion7% Saline in Nebulizer for Mac
MAC & Bronchiectasis | Last Active: Jun 22 12:04pm | Replies (62)Comment receiving replies
Replies to "I’m not an expert, but just came back from NJH and have been to a seminar..."
How long were you at NJH?
Did you find them to be exceptional?
I was diagnosed 2 yrs ago
MAC & bronchiectasis - very damaged lungs.
I did the things an infectious disease dr. Suggested.
I am stable per CT scan.
@healthybon Welcome to Mayo's MAC community - we are not experts, just people walking your path. But one thing many of us have learned is that there a pulmonologists who know and treat MAC regularly, and there are others who run across a patient occasionally and just follow their "standard protocol."
Fortunately, the recent addition of 7% saline nebs by National Jewish Health (NJH), Mayo and other centers of excellence in treating MAC has been a game changer for many of us. But it has totally escaped the notice of many pulmonologists to our detriment.
Is there any possibility that you can make an appointment at one of the specialty clinics? Or search your area for a pulmonologist with more expertise?
Sue