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Longtime caregiver looking for support and coping tips
Caregivers | Last Active: Oct 1 7:57pm | Replies (113)Comment receiving replies
I am so worried that it will come to placing my husband in another environment--not now, but I am wondering how I will know when, as I seem to be getting somewhat used to his behavior. That's scary! I suppose a decision would be made when/if he became dangerous, violent or tried to harm himself? He has just turned 71 and has had chronic blood cancer for five years and chemo once during that time. He is now MRD (which is minimal residual disease) and translates to, remission but testing every three months.
I have encouraged him to seek counseling to help with the stroke effects but he sneers that there is nothing anyone could do to help him! He is very, very negative most days with occasional good days, days during which one would not notice that there was anything off about his behavior. It is very confusing because it seems up and down, like a roller coaster (roller coasters cause me to vomit = : O
Thanks for your kindness,
Athena
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There are so many worries when faced with loved ones with chronic long term diseases or effects from diseases. Living with someone with depression or negativity is very draining. My spouse is bipolar and there were many years I worried if I could stand one more minute. A quote from Beartown by Fredrick Backman, Chapter 9 really touched me today. “All adults have days when we feel completely drained. When we no longer know quite what we spend so much time fighting for, when reality and everyday worries overwhelm us and we wonder how much longer we’re going to be able to carry on. The wonderful thing is that we can all live through far more days like that without breaking than we think. The terrible thing is that we never know exactly how many.” I found I could always get through one more day. Eventually we come out the other side and can say we did the right thing.