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Acute myeloid leukemia (AML): What can I expect?

Blood Cancers & Disorders | Last Active: Nov 12, 2023 | Replies (137)
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@jan8

Thank you for responding so quickly. I was originally diagnosed at a small hospital in Ilinois not far from my home. I am really not happy there but am still going for treatments there. I did go to Froedert in Wisconsin which is a huge hospital, and a very good one. He is the one that told me I have 15 to 18 months unless I get a transplant. But then proceeded to tell me only 25% survive. I am really scared of the transplant as you can die from that. I am going to Northwestern Memorial Hospital tomorrow for a third opinion, but not expecting good news although trying to stay optimistic. I am happy to hear that you are a survivor of 7 years. Probably much younger than me though. Question, where was your transplant center in Indiana? Maybe I'll get a 4th opinion! Indiana is a state over. I hope I'm not bothering you. I have so many questions and don't know where to turn. Thank you. Jan

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alive | @alive | Mar 7, 2023

I was 51 when I had my transplant, but it’s a lot more common now to see people past 65 who qualify for a transplant. There are a lot of factors involved and it’s important that a good transplant center evaluates and makes a recommendation. I had my transplant at IU Health in Indy, but I think they were in the process of merging with Methodist Hospital. I may be wrong, since I moved to Arizona and now see an oncologist at Mayo in Phoenix. I do highly recommend the transplant center I went through. I recommend doing some research. Be The Match is a nonprofit that matches stem cell donors with recipients and they found my donor in Germany. Look on their website - they list all the transplant centers and their statistics. You want to find a center that performs a good number of transplants and has good statistics.

You are welcome to send me a private message and we can chat on Zoom.

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