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Essential Thrombocythemia: Looking for information and support

Blood Cancers & Disorders | Last Active: Nov 4 11:06am | Replies (597)
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@bj87

See my post above. I’ve had ET for at least 30 years with no symptoms of any sort. I believe it is a cancer but your hematologist will take blood tests and will adjust medication to control platelets and red blood cells. I wonder about chest pains and shortness of breath though. They don’t seem to be symptoms of ET. Good luck and you’ll see it’s not so bad.

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cweible19782006 | @cweible19782006 | Mar 8, 2023

Thanks for your reply. My shortness of breath is a complication from my cardiac microvascular disease which I have read can be a complication of essential thrombocythmia. How high were your platelets when you were first diagnosed if you can remember and did they ever go up and down?

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