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Acute myeloid leukemia (AML): What can I expect?

Blood Cancers & Disorders | Last Active: Nov 12, 2023 | Replies (137)
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@alive

Hi Jan! I’m sorry to hear about your diagnosis. It’s a tough diagnosis and treatment options can be difficult to navigate. When I was diagnosed with AML seven years ago, I didn’t know anyone with the same diagnosis. I didn’t meet an AML survivor personally until sometime after my transplant. It’s hard to walk through that darkness without support. I’m glad you reached out here!

I’m not sure where you are receiving your treatment. With a diagnosis like this, I recommend reaching out to the top medical center close to you that treats a lot of patients with leukemia. I was diagnosed at a pretty good size hospital in Indiana, but the oncologist who broke the news to me told me that my best chances of being successfully treated were 3 hours away. That recommendation lead me to a transplant center. The transplant saved my live!

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Replies to "Hi Jan! I’m sorry to hear about your diagnosis. It’s a tough diagnosis and treatment options..."
jan8 | @jan8 | Mar 7, 2023

Thank you for responding so quickly. I was originally diagnosed at a small hospital in Ilinois not far from my home. I am really not happy there but am still going for treatments there. I did go to Froedert in Wisconsin which is a huge hospital, and a very good one. He is the one that told me I have 15 to 18 months unless I get a transplant. But then proceeded to tell me only 25% survive. I am really scared of the transplant as you can die from that. I am going to Northwestern Memorial Hospital tomorrow for a third opinion, but not expecting good news although trying to stay optimistic. I am happy to hear that you are a survivor of 7 years. Probably much younger than me though. Question, where was your transplant center in Indiana? Maybe I'll get a 4th opinion! Indiana is a state over. I hope I'm not bothering you. I have so many questions and don't know where to turn. Thank you. Jan

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