Connect
← Return to intractable facial pain, complex case
Discussion
intractable facial pain, complex case
Ear, Nose & Throat (ENT) | Last Active: Jul 2, 2023 | Replies (22)Comment receiving replies
I had a visit with Dr Das who told me in 15 minutes what happened to me, what it's called, and how to treat it.
http://www.usasinus.org/meet-dr-das
Traumatic trigeminal neuroma. Something my body really didn't like came in contact with my middle turbinates and damaged the nerves. Sinus surgeries only made the damage worse. Any allergens or changes in pressure caused an abnormal immune response making the pain worse. Something that's taken 58 doctors and 7 years. He found visible chemical damage on endoscopy and injected platelet rich plasma and stem cells into the area and said you might feel better in 4-6 weeks. The nerve was in there deep and I knew within a second of the injection he hit it.
Anyone suffering from ENS or anything like it you won't find any better care than this guy.
Replies to "I had a visit with Dr Das who told me in 15 minutes what happened to..."
Connect
@carterbeauford-
Thank you so much for coming back to follow up w/ your visit from Dr. Das. That’s great you were able to see him and he was able to provide you with some hope.
When I first read your story, I deep down knew it had something to do with the middle turbinate nerve sensations way up superiorly. It’s like something you can not explain.
I have learned through all of this that the Middle Turbinates are not something to be messed with due to their higher nerve sensitivity and protection of other areas.
Wishing you the best and hopefully you will be on the road to recovery soon.
Again-thank you for reporting back as you may save some people from making the decision to chance nasal/sinus surgeries. They are not to be taken lightly.