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Cold feet due to neuropathy - need help
Neuropathy | Last Active: Apr 28 3:43pm | Replies (200)Comment receiving replies
I have small fiber neuropathy. My toes and feet become freezing cold together with extremely painful every evening and night. I have not found anything to relieve this extreme cold and pain. (Blowing warm air from a hair dryer on my feet does not help.) All the usual Rx pain medications (e.g., Gabapentin, lyrica, cymbalta), and warm socks and blankets do not help. Extra-stength Tylenol reduces the pain but my liver does not like the Tylenol.
I'd like to hear from other small fiber neuropathy patients what you find can stop or reduce the pain from these freezing cold episodes?
Thank you
Replies to "I have small fiber neuropathy. My toes and feet become freezing cold together with extremely painful..."
I use a hot water bottle as my first choice.
Hi Jordan @sfn, I also have small fiber neuropathy and experience cold feet at night but mine don't feel quite as bad as yours and I don't have pain. You will notice that we moved your post to an existing discussion here so that you can meet other members experiencing similar symptoms:
--- Cold feet due to neuropathy - need help: https://connect.mayoclinic.org/discussion/cold-feet-need-help//
If you click the link above it will take you to the beginning of the discussion where you can read what other members have shared.
It’s sad that Gabapentin didn’t work, given that it’s one of the better choices for those with liver concerns. My initial dosage didn’t work for me, but in time, with increases, I got to a point where the extreme cold extremities happened much less frequently and became so much more tolerable than the first few months when my severe neuropathy suddenly started. I hope you find a manageable solution, because for me, I think the pain and misery from cold feet and hands is worse than normal neuropathy nerve pain.
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Neuropathy also causes my fingers to feel cold as well. I wear boots & gloves in the house. I have learned that if I ever get my feet and hands warm , it is so very easy to keep them warm than make them warm again if I allow them to get cold again. Hope that makes sense.