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Polycythemia Vera: Just been diagnosed

Blood Cancers & Disorders | Last Active: Dec 16 1:26pm | Replies (400)
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@themyth

Hi learn and live! I’ve just been diagnosed a couple of months ago. I’ve been battling some of symptoms for a while. Fatigue is really tough right now. I’ve got other issues including cardiovascular artery issues/stents. Im 54 and currently not working. Im debating on going disability route. My question is have you been able to work with this condition?
Thanks,

Myth

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Replies to "Hi learn and live! I’ve just been diagnosed a couple of months ago. I’ve been battling..."
learnandlive | @learnandlive | Mar 6, 2023

Hello themyth, I have been able to work a very physical job. I did and do fatigue more easily. I had to learn to pace myself. It took some time with treatment and medication to get comfortable living with PV/JAK2 . Lots of water, fresh air and exercise even alittle helps mentally and physically. I was diagnosed at 57 after a partial blood clot and its been 5+ years. Hang in there , I have had to slow down but treatment has helped and life is still good. Keep asking questions , many good people here and out there to help.

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