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Replies to "@caretakermom Pd at home & hemo was in center. How did you like home hemo? Did..."
@somedaydialysisfree, I delayed for as long as possible to have hubby get a fistula. He was using a CVC and it worked for us because so much easier and not as much germs at home. The center always pushed for fistula(because they will get marked down if using CVC by CMS) but I was able to postpone due to COVID. I was able to convince the dialysis neph to allow him to keep the CVC(have to religiously keep in clean, dry and intact) until tranpslant. I've got lots of accessories that I purchased to clean and cover the CVC when not in use(special CVC tegaderms not provided by the center)!!
But even if you had to cannulate though, a lot of the dialysis patients( on facebook support page) used buttonhole and worked well. Some ppl preferred the the ladder method. We were prepared to do the button hole method because his fistula would have been on his bicep, which doesn't leave much room for laddering!! In our center, we had to get permission to do button hole because they consider to be have more infectious risk!
i'm a family member, the actual tech that runs the home hemo machine. yes, using button holes. with dull needles. that is an easy procedure.
with this particular individual on hemo, the fact that he can have dialysis 5 days a week instead of 3, makes the treatment easier to recover from. it is less of a heavy hit.
@somedaydialysisfree, loved home hemo he did well on that. I gave him his HHD treatment it was a lot of work but got better clearance than PD. Had to quit PD because he had a leaky diapghram and the PD fluid was getting into his lungs! Took 1 year to find out about leakeage. 6 months into PD he got pneumonia and had to be hospitalized and it wasn't another 6 months that we found out there was what turned out to be old blood and lots of PD fluid in his lungs. I had previously complanied to the dialysis neph(he was not very good) and the doctor just brushed it off, listened to his lungs with stethoscope and said he was "dry"!! It was later that the pulmunologist who recommended thoracentesis that we found out he had at least 1 gallon of PD fluid in his pleural sac. Each time he had thoracentesis, he would temporary feel better but that day he would have issues with PD fluid draining. UCLA examined the fluid and it had gluecose so the pulmonologist concluded it was PD fluid. Had to have a thoracotomy to get clearance from UCLA to get listed because they wanted to make sure the black stuff (dried blood) in his lung was not cancerous!! It was a mess because although the thoracotomy was a success, the UCLA team gave him blood thinner post surgery and he almost bled to death and had to have emergency surgery on President's holiday. They had to call in the surgeons at midnight on holiday weekend to open him up and reverse Warfin!! They ended up giving up I don't know how many liters of blood product, because he lost so much!! Came out of OR with a intubated but thank goodness he was able to wean off of it. It was so scary I never want to go thru that again!! Anyways, he recovered thru the ordeal but it was all related to the PD fluid leakeage into his lung. I very much caution you to check for any leakage and if it happens, consider switching to a different treatment mode or ask your dialysis neph what you can do to "fix" it. In my hubby's case, the thoracic surgeon said he was NOT ALLOWED TO DO PD ever again!! Sorry for the rant but I was very scared when he had to go in for a second surgery at UCLA, in the same week that he had his thoracic surgery!!! It took him a while to recover but thank goodness his body was/is resilient and he recovered and eventually got approved for transplant!!
I don't want to scare you but a small population of people have this leakage issue. Most do well on PD. If you are getting good clearance and have no complication I would stay of PD. But home hemo worked better for my hubby. He felt terrible after treatment at in-center so he only did in-center for a few sessions.