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DiscussionMDS treatment options other than bone marrow transplant
Blood Cancers & Disorders | Last Active: Mar 31, 2023 | Replies (60)Comment receiving replies
Replies to "Ok dx is mdsEB-2 so any info be welcomed thanks"
Hi Howard, I looked up the classification for your MDS-EB2 diagnosis. The EB-2 is the staging of your disease. EB stands for Excess Blasts.
Blasts are immature blood cells, which we don’t like to see outside of the bone marrow. So if you have some free floating in your blood, that signals the need for treatment.
Because you’re not eligible for a bone marrow transplant your doctor is putting you on a type of chemo therapy (Inqovi) which was approved for patients with MDS.
From what I’m reading, patients who take the drug have a much lower frequency of needing transfusions. So that’s a plus for you.
However, it is a type of chemotherapy so there may be some side effects such as nausea. The article I read today suggested asking your doctor to prescribe anti-nausea medication to take along with it, in case that happens. Not everyone has that side effect. It is a tablet or capsule taken for 5 days every 28 days…unless your doctor prescribes differently.
You may also experience some fatigue and changes in blood counts so you will have more frequent blood tests to make sure your blood numbers are good.
This also impacts your immune system so you could be more susceptible to colds, flu, infections, etc. so you’ll want to just add a level of caution with being out with people, such as wearing a mask in public, washing hands frequently, etc.
Other than what I’ve read and what can be found online about Inqovi, that’s out of my area of experience. Hopefully there will be other members who have been on Inqovi who will share their journey with you.
When do you start your first cycle?