Hi @somedaydialysisfree 😊
It's great to hear from you! I am like you. I am still working on clearing my BK virus for the first time.
I am down to 4 million in the urine and 22 in the blood. I have been on reduced immune suppression for 6 months. I started at > 100 million (HIGH) in the urine so my latest 4 million is definitely better. What are your most recent BK test results now?
In my reading, I see that it's not a problem to get a 2nd transplant after BK virus is cleared. So that's good news.
I am hopeful that someone will jump in to this discussion and let us know if anyone had their BK virus return after being resolved? and if anyone had a 2nd transplant due to an infection.
I know that @caretakermom hubby had a challenge with CMV virus returning until they successfully revised the immune suppression meds. @caretakermom Is hubby doing well and staying infection free on the new meds?
@cmael and @leahd did you both remain BK free after finally clearing it?
Anyone else have a challenge with recurring infection?
Thanks everyone!