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Diagnosis of low grade lymphoma leukemia

Posted by faith3 @faith3, Dec 19, 2022

After Covid booster my lymph nodes awoke under armpit and remained swollen. Second ultrasound showed lymph node getting larger. Doctor sent me for biopsy and result was low grade lymphoma leukemia. Does anyone have experience with this? I will be referred to oncology. I have read that this is often misdiagnosed but I did get wbc differential and wbc was high and hemocrit slightly lower. I am frightened as I did not expect this outcome.

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tatayababa | @tatayababa | Mar 3, 2023
In reply to @elainejarrett "I am going to oncologist next week as I have had some unexplained weight loss but..." + (show)
@elainejarrett

I am going to oncologist next week as I have had some unexplained weight loss but no other symptoms. May not be related to the cancer but just want to make sure. Do you have low platelets and enlarged spleen? My CT scan showed my lymph node from my spleen to my kidney is enlarged too. Keep in touch.

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@elainejarrett i dont have an oncologist ; did you ever have a hematologist ; i have enlarged lymph nodes in both axillas; i will get blood results next friday; did you have a biopsy and discover all this?

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elainejarrett | @elainejarrett | Mar 4, 2023
In reply to @tatayababa "@elainejarrett i dont have an oncologist ; did you ever have a hematologist ; i have..." + (show)
@tatayababa

@elainejarrett i dont have an oncologist ; did you ever have a hematologist ; i have enlarged lymph nodes in both axillas; i will get blood results next friday; did you have a biopsy and discover all this?

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I did have a bone marrow biopsy and aspiration which confirmed what was going on with me. Initially, low platelets, enlarged spleen but then came low IGG and hemoglobulin so then that prompted the hematologist/oncologist to do the biopsy. Good luck with everything and keep in touch. Hope blood results give doctor more information for you.

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slr2 | @slr2 | Nov 3 2:53pm
In reply to @faith3 "Hi Sharon. Thank you so much for your comments and well wishes. I thought I was..." + (show)
@faith3

Hi Sharon. Thank you so much for your comments and well wishes. I thought I was pretty health too until I got the Vovid vaccines and boosters. My WBC count was extremely high also and thst was frightening especially since I was unaware that something was wrong. I prayed no cancer and then hit the biopsy results. I’m praying for all on this journey.

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Hello Faith. I hope you are doing well. I was recently advised to do the watchful waiting approach and am wondering if this is what was suggested for you. It has not yet been determined exactly what type of low grade NHL I have but got the diagnosis in September.

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Moderator
Colleen Young, Connect Director | @colleenyoung | 4 days ago
In reply to @slr2 "Hello Faith. I hope you are doing well. I was recently advised to do the watchful..." + (show)
@slr2

Hello Faith. I hope you are doing well. I was recently advised to do the watchful waiting approach and am wondering if this is what was suggested for you. It has not yet been determined exactly what type of low grade NHL I have but got the diagnosis in September.

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Watchful waiting approach is commonly recommended for some types of non-Hodgkin's lymphomas. It can be unsettling. I prefer to use the term active surveillance since that sounds proactive, rather than simply waiting. Regardless of the term used, your team is monitoring your closely with this treatment approachment.

@slr2, have you learned more about your type of NHL in the meantime? How are you doing?

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