1. < Brain & Nervous System

Shingles and Postherpetic Neuralgia and Pain

Posted by tikigod18 @tikigod18, Jan 13, 2019

Has anyone suffered from LONG lasting neuropathic pain as a result of Shingles, and what treatment do you use for the pain? My daughter had shingles at 21, a spinal cord stimulator inserted and removed, many trigger point injections, all of which may have contributed to the thoracic pain she has. She is now 34, and teaches yoga, but is still on a compound prescribed by a pain management Dr. in NYC what is basically Oxy. I am paying for this, since neither she nor her husband can afford it at around $500 a month. She could not find a physician in Fl. I know who would prescribe this medication after 10 years, thus the use of an out of state physician. I do not want to see her suffer, nor can I discuss much with her since we barely speak, but this expense, coupled with paying for asthma inhalers that are expensive is becoming more and more of a strain. Any thoughts for alternatives are appreciated.

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raebaby | @raebaby | Mar 2, 2023

I wish you lots of good luck!

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fmmartinez58 | @fmmartinez58 | Mar 4, 2023
In reply to @raebaby "They aren't on Amazon. You have to go to their to Voxxlife.com . Supposedly, they now..." + (show)
@raebaby

They aren't on Amazon. You have to go to their to Voxxlife.com . Supposedly, they now have a deal that if you use me as a referral I get a $30 credit and you get 25% off. They have a shipping charge that is outrageous for such a little item, but I like the product so much I'll pay it.
You have me send you the info for your referral and then you use type it in as you order.
Otherwise, if you don't want to go the referral way, it's easy to order on their site on line. They are based in Canada.

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Will you please send me information to order. I am willing to try again. Thank you.

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1 reply
raebaby | @raebaby | Mar 4, 2023
In reply to @fmmartinez58 "Will you please send me information to order. I am willing to try again. Thank you." + (show)
@fmmartinez58

Will you please send me information to order. I am willing to try again. Thank you.

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I'll try to figure it out so you get the 25% off and I get the $30, but if it doesn;t work easily (a friend had a problem) You can just order direct at the regular price.

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1 reply
raebaby | @raebaby | Mar 4, 2023

I have another thought, why don't you call them and ask wha they think will work best for you. I'll get you their phone number.

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raebaby | @raebaby | Mar 4, 2023

Phone number 844-550-8699 I and my friends use the Liberty Patch. I also have some of their socks that are handy because i don't run out of socks and they are good to go out shopping in. I put another sock over them so the heels don't wear out.
https://voxxlife.com/superpatch/

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1 reply
fmmartinez58 | @fmmartinez58 | Mar 4, 2023
In reply to @raebaby "Phone number 844-550-8699 I and my friends use the Liberty Patch. I also have some of..." + (show)
@raebaby

Phone number 844-550-8699 I and my friends use the Liberty Patch. I also have some of their socks that are handy because i don't run out of socks and they are good to go out shopping in. I put another sock over them so the heels don't wear out.
https://voxxlife.com/superpatch/

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Thank you. 🙂

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fmmartinez58 | @fmmartinez58 | Mar 6, 2023
In reply to @fluffy10 "Thanks for all the comments. I have had the PHN pain now for 10 months. Am..." + (show)
@fluffy10

Thanks for all the comments. I have had the PHN pain now for 10 months. Am now taking gabapentin. Was able to get off the amitriptalyn. Went off my plant based diet and the pain got worse, so back on the diet. I get some temporary relief from CBD. I really appreciate all the comments on this site. I will keep searching because i have things to do and this pain is slowing me down.

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Where did you find information regarding your plant based diet. I am in such misery, I have to try. How long until you noticed a change in your pain level. Thank you.

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fmmartinez58 | @fmmartinez58 | Mar 10, 2023
In reply to @hopeful33250 "I have a question for all of those in the Shingles discussion. I've been taking Gabapentin..." + (show)
@hopeful33250

I have a question for all of those in the Shingles discussion. I've been taking Gabapentin for several weeks now and it certainly does help with the nerve pain related to Shingles. I would certainly like to decrease the dose (or stop altogether) because of some of the side effects which include balance problems. Has anyone tried a Tens unit for Shingles pain? If so, what was your opinion?

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I don't want to discourage you as tens units do help people. For me with PHN. It was just another item to buy with many others. It did not help.

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fmmartinez58 | @fmmartinez58 | Mar 10, 2023
In reply to @jerid "Does anyone here experience Shingles chronic PHN. I just don't know how to handle it anymore...." + (show)
@jerid

Does anyone here experience Shingles chronic PHN. I just don't know how to handle it anymore. If anyone has a positive answer to rid ones body of this pain, please tell me.

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I am still trying. That is the best thing to do. One day, something will lower your pain to a tolerable level. I feel very bad for you because I completely relate to your post.

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fmmartinez58 | @fmmartinez58 | Mar 17, 2023
In reply to @gmaw4 "I’m in my 15th year of dealing with PHN after shingles. Has anyone used stem cell..." + (show)
@gmaw4

I’m in my 15th year of dealing with PHN after shingles. Has anyone used stem cell therapy to regenerate nerves?

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I have tried most everything but stem cell. Good luck.

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