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Essential Thrombocythemia: Looking for information and support

Blood Cancers & Disorders | Last Active: Apr 15 2:24pm | Replies (476)
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@cweible19782006

Hello and thank you very much for responding and for all of the useful articles and information. I met with a hematologist last week and we are waiting on the results of the JAK2 and a couple of other things she ordered. Needless to say I am anxiously waiting. I am already at The Dana Cancer Clinic in my city that I live. I know I still have lots of testing to go. It's just hard to take in. I have to get a colonoscopy done ASAP and of my mammogram.

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Lori, Volunteer Mentor | @loribmt | Mar 4, 2023

I know it’s a lot thrown at you right away…I’ve been in your shoes (not ET, but another blood cancer) It clips you right off at the knees. But in your situation, getting this diagnosis is really positive because now you know why your other meds weren’t working! This discovery is big…and manageable. 🙂

There are a couple of different treatment options that your hematologist will discuss with you once he determines your exact diagnosis. Don’t hesitate to reach out to me or any of the other members who have ET. You’ve just joined a new family and we’re all here to offer support and encouragement.
Take a deep breath…and don’t forget to exhale! Keep me updated, ok?

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