← Return to Essential Thrombocythemia: Looking for information and support

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@loribmt

Good morning, @cweible19782006 Let’s get you Connected with some fellow members who also have Essential Thrombocythemia. ET is usually a very slowly developing condition where the bone marrow can start overproducing platelets. It’s in a category of blood cancers called Myeloproliferative Neoplasms where any of the blood components can be affected. I’m sure you’ve been pouring over information to find out as much as you can about your diagnosis.
Here are a few more informational articles for you:

Myeloproliferative Neoplasm from MDAnderson.org
https://www.mdanderson.org/cancer-types/myeloproliferative-neoplasm.html
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https://www.mayoclinic.org/diseases-conditions/thrombocytosis/symptoms-causes/syc-20378315
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https://my.clevelandclinic.org/health/diseases/13350-thrombocytosis
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https://www.lls.org/myeloproliferative-neoplasms/essential-thrombocythemia
We have several conversations in the group with fellow members, @eileen11108 @1995victoria @rjgregory440 @chetalbin @annetterzam and many others in this discussion on jak2 mutations. That genetic mutation can contribute to ET developing. You may or may not have that but the treatments can be similar.
https://connect.mayoclinic.org/discussion/jak2-mutation-effects-and-questions/?pg=12#comment-194373
@shenriq started this discussion a few years ago but it is current with members. @bj87 @nohrt4me

~Essential Thrombocythemia: Looking for information and support
https://connect.mayoclinic.org/discussion/essential-thrombocythemia-1/
These are just a few to get you started. You can always type in key words such as ET, Essential Thrombocythemia, MPN (myeloproliferative neoplasms) in the search bar and it will bring up several more discussions.

If you haven’t already, I’d urge you to see a hematologist oncologist who specializes in blood cancers. This is treatable but it needs the correct diagnosis. Have you had any genetic testing done to see if you have the JAK2 mutation?

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Replies to "Good morning, @cweible19782006 Let’s get you Connected with some fellow members who also have Essential Thrombocythemia...."

Hello and thank you very much for responding and for all of the useful articles and information. I met with a hematologist last week and we are waiting on the results of the JAK2 and a couple of other things she ordered. Needless to say I am anxiously waiting. I am already at The Dana Cancer Clinic in my city that I live. I know I still have lots of testing to go. It's just hard to take in. I have to get a colonoscopy done ASAP and of my mammogram.