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Monoclonal Gammopathy & Granulatomus Disease + new ANA+ in AZ
Blood Cancers & Disorders | Last Active: Mar 7, 2023 | Replies (5)Comment receiving replies
Is your grantulomus sarcoidosis? I’ve been diagnosed with MGUS (1/22) and pulmonary sarcoidosis (5/22) and looking for others. It’s a very very rare combination. I’ve had no follow up appointments or concern from any dr but my PCP is sending me to see a hematologist oncologist in June just to make sure nothing more needs to be monitored.
Replies to "Is your grantulomus sarcoidosis? I’ve been diagnosed with MGUS (1/22) and pulmonary sarcoidosis (5/22) and looking..."
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Thank you for responding! My initial diagnosis was/is MGUS & Granulatomous Disease (GD) w/o taking other symptoms and history into consideration (pending) such as presence of lambda light chains, multiple benign nodules (1 calcified), Acute on Chronic Hypoxic Respiratory failure; Spinal Cord Injury (cervical, incomplete) resulting in Quadraparesis; stage III Kidneys; Osteomyelitis; Pneumonias; Pleuritic Rub; Diabetes II (and more). I was referred to Hem-Onc up here in Prescott bc Mayo didn’t have openings, waited 6 months for new patient appt.. only to miss it due to fam emergency (grandson). I can’t wait another 6 months. 😢 I need answers! Sound much like you? May I ask who/where you were referred to for Hem/Onc and how long it took to get you in?