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Clofazimine for MAC: Anyone have experience with this drug?

MAC & Bronchiectasis | Last Active: Oct 13, 2023 | Replies (60)
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@angeles31

Anyone using Clofazamine?
I had to stop azithromycin because it caused Hearing loss
Ophthalmologist warned against ethambutol because I have glaucoma Have an appointment at Mayo on May 24.
Having problems with the big three combination

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Replies to "Anyone using Clofazamine? I had to stop azithromycin because it caused Hearing loss Ophthalmologist warned against..."
marthamac | @marthamac | Mar 4, 2023

I also had to stop azithromycin about 6 months into my first round of treatment for MAC (in 2000). They substituted ciprofloxacin. The MAC came back within a year. I went to NJH and they decided to try clarithromycin. I was on that along with ethambutol and rifampin 3 times a week for 10 months, then daily for the last 4 months and have had no change in my hearing tests.

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marthamac | @marthamac | Mar 4, 2023

I meant to say I had to stop the azithromycin due to hearing loss.

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Colleen Young, Connect Director | @colleenyoung | Mar 4, 2023

Hi @angeles31, I moved your question about Clofazamine to this discussion on the same topic:
- Clofazimine for MAC: Anyone have experience with this drug?: https://connect.mayoclinic.org/discussion/clofazimine/

I did this so you can read previous helpful posts and connect easily with members like @marthamac @bnthorson @dulwich @jenblalock @hydrang3a @nac1 @marlin and @sueinmn

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