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Acute myeloid leukemia (AML): What can I expect?
Blood Cancers & Disorders | Last Active: Nov 12, 2023 | Replies (137)Comment receiving replies
I’m curious about your clinical trial medication too and wondering if I might be the one of the lucky recipients of the results of your test run.
I had AML with the FLT3 mutation along with 2 other mutations and received the standard 7+3 induction for initial treatment. But was also on the abrogating, targeted drug for FLT3 called Midostaurin. It was originally designed for patients with solid tumors but found to be a really solid drug for AML patients with the FLT3 mutation.
https://www.nejm.org/doi/full/10.1056/NEJMoa1614359@jeanadair123 I’m really sorry to hear about your friend’s rough time with this aggressive leukemia. The odds weren’t in my favor either but here I am 4 years later and in a very durable remission from AML. I wish her all the success in the world with this next step. There are several of us here who have had AML and more than willing to talk anytime.
Keep us posted, ok?
Replies to "I’m curious about your clinical trial medication too and wondering if I might be the one..."
My mom just got diagnosed with AML last week, and will be cared for by Mayo Clinic. I'm on the forum to seek resources for her and the survivors' comments stand out to me as hopeful and grounded. We go back to Mayo on Wednesday for a treatment options discussion. She is ready for Wednesday to be here, but it's still Sunday. Let me know if you're willing to chat outside of the forum sometime this week? Thank you for sharing your story here!
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I am trying on to overstep trying to help right now, just try8ng to give her the info I find to add to the questions for her doctors so she will have an idea of what is available out there and if she would be a candidate? Thanks for your info.