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Acute myeloid leukemia (AML): What can I expect?

Blood Cancers & Disorders | Last Active: Nov 12, 2023 | Replies (137)
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@kt2013

Hi. I am sorry for your friend’s diagnosis. The clinical trial I was on was through the Mayo Clinic and is now completed. It was specifically for patients with the FLT3 genetic mutation. I know there have been many good clinical trials developed in the past 10 years since I was diagnosed. From my experience, I was glad to participate in a clinical trial that might provide me with at least the best treatment available or potentially the next generation of treatment. That made it a win-win decision for me. Please send my best wishes to your friend.

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Replies to "Hi. I am sorry for your friend’s diagnosis. The clinical trial I was on was through..."
Lori, Volunteer Mentor | @loribmt | Mar 3, 2023

I’m curious about your clinical trial medication too and wondering if I might be the one of the lucky recipients of the results of your test run.

I had AML with the FLT3 mutation along with 2 other mutations and received the standard 7+3 induction for initial treatment. But was also on the abrogating, targeted drug for FLT3 called Midostaurin. It was originally designed for patients with solid tumors but found to be a really solid drug for AML patients with the FLT3 mutation.

https://www.nejm.org/doi/full/10.1056/NEJMoa1614359

@jeanadair123 I’m really sorry to hear about your friend’s rough time with this aggressive leukemia. The odds weren’t in my favor either but here I am 4 years later and in a very durable remission from AML. I wish her all the success in the world with this next step. There are several of us here who have had AML and more than willing to talk anytime.
Keep us posted, ok?

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