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Diagnosis of low grade lymphoma leukemia

Blood Cancers & Disorders | Last Active: Mar 4, 2023 | Replies (22)

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@elainejarrett

I too have low grade B cell Lymphoma/Leukemia. Started end December 2019 with low platelets and enlarged spleen. This continued until blood work prompted a CT scan and bone marrow biopsy in January 2021. I did get a second opinion at the Mayo Clinic in Ri=Rochester MN. My oncologist said this was good news and I replied with ""For whom? Not where I am sitting". It is a wait and see cancer but I worry every time anything different comes up. It is incurable but chemo seems to be the treatment to put one in remission. I am not sure I want to go that route and put all that poison in me. There are alternative treatments but the problem is they are not covered by insurance and very costly. It is a huge worry for all of us with the BIG C.

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Replies to "I too have low grade B cell Lymphoma/Leukemia. Started end December 2019 with low platelets and..."

@elainejarrett i hear you loud and clear; i was diagnosed in CLL and SLL 3 weeks ago; MRI/CT scans have been done; no bone marrow biopsy yet; i have heard the same; all good no symptoms could be years before treatment needed....sounds good but scary... you having symptoms?