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Anyone With PDAC and the HNF1A Mutation?

Pancreatic Cancer | Last Active: Mar 2, 2023 | Replies (4)
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@gardenlady1116

I live the NYC area, there are five National Cancer Center recognized pancreatic centers in NYC. Sloan has the best reputation and I went for consultation after having the BRCA1 diagnosed. I just went through what was posted on line about the oncologists until I found what I was looking for.

These are some scholarly articles. One or more of the authors of the papers might be an oncologist with active clinical practice that you could see. It does take some research, but hopefully you will be able to find someone who can help
https://pubmed.ncbi.nlm.nih.gov/30074477/
https://elifesciences.org/articles/33947.pdf
https://academic.oup.com/carcin/article/35/12/2670/334730

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Replies to "I live the NYC area, there are five National Cancer Center recognized pancreatic centers in NYC...."
patti303 | @patti303 | Mar 2, 2023

Thank you for the links. There was one paper I haven't seen before that was very helpful. I think I'll try contacting some of the researchers to see if they are aware of which centers are looking for or monitoring this combo. I've noticed that it is only recently a flurry of papers on HNF1A have been published. One paper mentioned that it was the increase in data and availability of wide-spread data was proving valuable. There haven't been any trials that I qualify for, so am trying to be proactive as odds are a new tumor will develop.

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