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Ray,
I started noticing leg sensations and perceived weakness back in 2017…neurologist did blood work, brain, neck and lumbar scans as well as NCS/EMG. Eventually neuropathy showed up…although she never said what type. My own research tells me it must be large fiber type as the NCS/EMG showed it.
A few years later I tested positive for some autonomic neuropathy. While the neurologist said she doesn’t know cause, I am pre-diabetic…some studies show that could be a cause. The neurologist provides little suggestions. As I mentioned previously, it has continued to gradually progress with more numbness, weakness and fatigue. Im still able to walk daily ( a couple miles max) but it’s getting tougher and balance has worsened lately. I’ve had undiagnosed motion/ balance issues since late 20’s which magnifies the issue.
Thinking back I think there were signs prior to 2017…likely small fiber…the neurologist told me once if you have small fiber ( or large)…you have or will have the other. Ray, were you tested for autonomic neuropathy?
Steve
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Steve,
Stop me if I've already mentioned this but I first noticed some short-term (30 minutes?) weirdness in my walking way back in 2012, but because it was short-lived I never even mentioned it to my primary doc. But then, year by year, it got worse: more bothersome, making un-fun things I used to really enjoy, like trail and city streets walking.
And I too have had all the tests: cervical, thoracic, and lumbar X-rays, CT and MTI scans, and most recently an EMG. You mention "large fiber." I'm not familiar with that as a type of neuropathy. I'm going to have to look that up. All my neurologist said, after the EMG (and a long pause), was "idiopathic polyneuropathy." He sent me for a second opinion, and I received the same diagnosis.
Even more recently than the EMG, I was found to have a low red blood cell count (possibly anemic, but that hasn't been confirmed yet). Later this month I will be meeting again with my neurologist to discuss whether a low red cell count might have any bearing on my neuropathy.
Autonomic neuropathy? Mmm? That's another term I'm not familiar with. As far as I know, I've not been tested for it.
Ray