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Ovarian Vein Thrombosis

Posted by sonyarountree @sonyarountree, Dec 6, 2022

Has anyone experienced having Ovarian Vein Thrombosis? It's very rare to get and I was just diagnosed with this and non of the Dr's here are familiar with this bc it's so rare. I would love to find more information or someone to go to that has more knowledge on this type of diagnosis. Thanks for your time.

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sonyarountree | @sonyarountree | Jan 17, 2023
In reply to @telwel2003 "Hey there..I was just diagnosed with the same thing right before Christmas. I’m just as clueless..." + (show)
@telwel2003

Hey there..I was just diagnosed with the same thing right before Christmas. I’m just as clueless as you. No recent pregnancies or pelvic surgeries. Found on a routine CT scan (I get them every six month due to a cancer I had six years ago). I’m on Eliquis for at least six months. I did learn that it can take 3 to 6 months for it to dissolve. Interested to hear what you learn too.

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Hey! I am still on Eliquis and still clueless as every Dr I've been to so far is lol I go to the Hematologist/ oncologist next Friday and then the Vascular Dr Feb 1 in hopes they can give me more answers. I would love to keep in touch as I've found nobody that has this for no reason like me. If you want fb friend request me and we can message back and fourth and keep each other updated. My name on fb is Sonya Sasser Rountree.

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1 reply
telwel2003 | @telwel2003 | Jan 17, 2023

Perfect! I’ll friend you now…we’re on this journey together!

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telwel2003 | @telwel2003 | Jan 17, 2023
In reply to @sonyarountree "Hey! I am still on Eliquis and still clueless as every Dr I've been to so..." + (show)
@sonyarountree

Hey! I am still on Eliquis and still clueless as every Dr I've been to so far is lol I go to the Hematologist/ oncologist next Friday and then the Vascular Dr Feb 1 in hopes they can give me more answers. I would love to keep in touch as I've found nobody that has this for no reason like me. If you want fb friend request me and we can message back and fourth and keep each other updated. My name on fb is Sonya Sasser Rountree.

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Oh..one more thing..there’s a DVT/PE page on FB..there’s a few people on the page with the same thing..

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sonyarountree | @sonyarountree | Mar 2, 2023
In reply to @lidiana "@sonyarountree @loribmt is this Ovarian VT possible in invasive DIE II patients that have 2.2 cm..." + (show)
@lidiana

@sonyarountree @loribmt is this Ovarian VT possible in invasive DIE II patients that have 2.2 cm cyst and had chocolate cysts removed under laparoscopy surgery? I have extreme pain in groin area where the cyst is currently… asking since DIE II it’s linked with lots of cardiovascular and vascular issues.

Thank you so much 🙏🏻

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I'm not sure but you can get a CT w contrast and it will show up if you have one.

@lidiana

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