← Return to How to best explain?

Discussion

How to best explain?

Neuropathy | Last Active: Nov 11 6:02pm | Replies (18)

Comment receiving replies
@stallen

Hi Ray…thank you for your post…I check this site often and never see much about balance issues. I have idiopathic neuropathy…60 yr old male. As mine has progressed my balance has gotten worse…I walk every day…mine is aggravated by motion …the more I walk the worse it gets. Your ship analogy is good…I also equate it to having too much to drink…but no fun! I suspect this from autonomic system damage. ..do you have this? I also have some numbness in parts of feet/legs as well as aches/pains …and lots of fatigue. I fret over the future and therefore takes a mental toll as well. I would love to hear your entire story A-Z if you have the time. Thanks again for your post.
Steve

Jump to this post


Replies to "Hi Ray…thank you for your post…I check this site often and never see much about balance..."

I wish you luck going forward. I am now 85 and the numbness and balance have got much worse since I turned 80. I can shuffle around the house without a cane but need a cane or rollator walking outside.

Hi, Steve (@stallen)

You and I both: idiopathic neuropathy. Mine also progresses the more I do, not only walking (which, sadly, I now do very little of), but also basic household chores. My neurologist administered an EMG and told me I have a certain measure of nerve damage in my feet. In the past, whenever I'd been asked if I had numbness in my feet, I'd say, I don't think so. The EMG proved me wrong. I have a cane, but I'm not very proficient at using it; I tote it more like a riding crop. Among my major complaints, linking to my neuropathy, is leg weakness: leg weakness is my biggest problem after "doing too much" (things that hadn't been "too much" only a few years ago). As you may know from my profile, I'm 78, but –– if it weren't for the neuropathy –– a hale & hearty 78. I used to be a long-distance runner, pretty good one, too (ironic, isn't it, that now I shy away even from walking). If you and I bounce a few posts back & forth, I'll be happy to tell you more about my experience. Also, about the many different kinds of doctors I've seen and their various suggestions as to how I might reclaim even a little bit of trustworthy balance. (So as not to get your hopes up, nothing so far has been a cure. Regular PT, which I do here at home –– an online program –– has helped somewhat.) Thanks for writing, Steve! Let's keep talking.

Cheers!
Ray