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Replies to "I have had Oral LP for over 8 years. Seen numerous top specialists in NYC and..."
Autoimmune Diseases | Last Active: Oct 2 10:07pm | Replies (98)
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I have had Oral LP for over 8 years. Seen numerous top specialists in NYC and Boston. I hear over and over, there is NO CURE. And there does not seem to be any treatment except steroids. These are only a temporary fix. Someone needs to research this!
Replies to "I have had Oral LP for over 8 years. Seen numerous top specialists in NYC and..."
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I agree!!!!! I have Esophageal Lichen Planus which is incredibly rare! It's terrible!!! I also have it in my mouth and at times in my skin. It's so hard to eat. I've lost 30lbs. in the last few months. I truly feel for you!