@jonepotter
Congratulations on your new liver transplant and your new life! I had my transplant in May, 1993, almost 30 years ago!! I was very blessed to get a new liver and a chance to watch my children grow up, get married and have children:).
Things were very different back then, they told me they had no clue how long a new liver would last… My doctors were Great and I’ve had very few problems. Someone told me that I wouldn’t feel normal for a year! That was hard to believe but it was spot on back then..
Here are a few thing I learned that helped me survive these last 30 years:
•Be your own Advocate - no one cares more about your health than you do. Learn everything you can about your meds, all of the different blood test etc.
•Ask questions when something doesn’t seem or feel right. The transplant doctors and coordinators are great but they have so many patients and they can miss things on your blood test etc.
• Keep a copy of your blood test results so you can compare them. (If my allergies were bad, then my numbers were bad too! Same with stress.).
• Patience is one thing that you will need every day. (Prednisone made me crazy til I got off of it)
•Also, get a pharmacist that’s very knowledgeable about all of the drugs you take… they will help make sure all of your meds are compatible:) try to make sure your pharmacist will be there for a while (I use grocery store pharmacies, they don’t usually have different pharmacist every few days)
•Walk every day, it helps clear your head and exercise is good for you!!
•Take all your meds on time every day & do some research on the meds you take. I found different vitamins helped some meds work better.
•Don’t take any herbs, they can cause lots of problems !
•Accept the fact that your liver can reject, treat it good and learn about your body and when things aren’t right.
•Live your life one day at a time, be happy and thank God for your second chance and all the wonderful things He has given us.

Sorry this is so long and I’m sure I left things out. Just enjoy your new life with your new liver❤️