Median Arcuate Ligament Syndrome (MALS)

I am so sorry you are dealing with horrible pain too and had a negative experience.

Honestly it has been several ER visits, multiple doctors, what I would say misdiagnosis and a lot of pain for my friend. She was finally referred to a MD doctor after hearing a similar story of another Amish young lady. It was several months of waiting for that appointment, a very long trip, but she did finally get some answers and recommendations for further tests to be done at home. (One of those was the plexus block). She now found and has an internal medicine doctor that has been very compassionate and has been helpful in trying to refer to a loser vascular doctor. Thanks to MALS PALS fb group we have stories and doctor recommendations! If you aren’t on that group I would highly recommend it as it is active and filled with friends going through the same thing. It gives hope! You can ask questions!

I hope that you can find help soon. ❤️

(A closer vascular doctor not a loser…..auto correct and me not reading through before I hit send)

I am so sorry you are dealing with horrible pain too and had a negative experience.

Honestly it has been several ER visits, multiple doctors, what I would say misdiagnosis and a lot of pain for my friend. She was finally referred to a MD doctor after hearing a similar story of another Amish young lady. It was several months of waiting for that appointment, a very long trip, but she did finally get some answers and recommendations for further tests to be done at home. (One of those was the plexus block). She now found and has an internal medicine doctor that has been very compassionate and has been helpful in trying to refer to a loser vascular doctor. Thanks to MALS PALS fb group we have stories and doctor recommendations! If you aren’t on that group I would highly recommend it as it is active and filled with friends going through the same thing. It gives hope! You can ask questions!

I hope that you can find help soon. ❤️

I am so sorry you are dealing with horrible pain too and had a negative experience.

Honestly it has been several ER visits, multiple doctors, what I would say misdiagnosis and a lot of pain for my friend. She was finally referred to a MD doctor after hearing a similar story of another Amish young lady. It was several months of waiting for that appointment, a very long trip, but she did finally get some answers and recommendations for further tests to be done at home. (One of those was the plexus block). She now found and has an internal medicine doctor that has been very compassionate and has been helpful in trying to refer to a loser vascular doctor. Thanks to MALS PALS fb group we have stories and doctor recommendations! If you aren’t on that group I would highly recommend it as it is active and filled with friends going through the same thing. It gives hope! You can ask questions!

I hope that you can find help soon. ❤️

My daughter kk er recently had cdif from antibiotics. This triggered a severe lower abdominal pain. In doing a complete work up at the hospital they found a rare condition called Mals. Looking for any journeys regarding this syndrome as well as anyone who experienced severe chronic pain after a cdif infection.

Yes she does/did. POTS and is on a bath blocker to help this. It seems to help her (mostly).

A cardiologist diagnosed and treats this portion of her illness

I need some help and guidance. Have a 20 year old daughter, live in Ontario Canada. She's been dealing with MALS like symptoms for 17 months. No one so far here, has been able to diagnose her and we've had some incorrect testing, which adds to the problem. All we need is a MALS experienced doctor to do more correct testing so we can possibly get a diagnosis. Like a DOPPLER US with correct protocols, MRA with proper protecols. We know she likely needs a plexus block but scared to do away from home. Anyone know of any doctors who could help with testing?

I need some help and guidance. Have a 20 year old daughter, live in Ontario Canada. She's been dealing with MALS like symptoms for 17 months. No one so far here, has been able to diagnose her and we've had some incorrect testing, which adds to the problem. All we need is a MALS experienced doctor to do more correct testing so we can possibly get a diagnosis. Like a DOPPLER US with correct protocols, MRA with proper protecols. We know she likely needs a plexus block but scared to do away from home. Anyone know of any doctors who could help with testing?