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PV Itching Not After Bathing

Blood Cancers & Disorders | Last Active: Oct 12, 2023 | Replies (63)

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@saucy

I have constant tickling all over face, ears and back. Also bad itching on scalp and dermatologists had me use Vani cream shampoo and conditioner. Also Fluocinonide solution, neither has helped. I don't know what PV is but all blood work comes back normal. This has been going on for several years and often feels like little nats crawling on me. I only have to scratch for a second but it will pop up somewhere else. Dives me nuts especially when trying to go to sleep and have to constantly scratch! I'm not on any meds but do take ND Thyroid for Thyroid. I've gone through many Thyroid meds over the years so don't think it's the meds. These cases in this thread sound a lot more severe but would like to know what PV is, Thanks

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Replies to "I have constant tickling all over face, ears and back. Also bad itching on scalp and..."

Hi @saucy, In this case PV is Polycythemia Vera. It’s
A type of blood cancer where you marrow produces too many red blood cells. This would show up in your blood work. Yours are normal so this most likely wouldn’t be the cause of your itching. But here is a little information on PV.
https://www.mayoclinic.org/diseases-conditions/polycythemia-vera/symptoms-causes/syc-20355850
You mentioned that you’re taking ND Thyroid for an under active thyroid gland. Hypothyroidism can cause itching and hives. There is an autoimmune disease that can be a contributing factor for Hypothyroidism called Hashimoto’s Disease. This is an auto immune disease which causes an under active thyroid.
Here are a couple of articles you might find helpful.
One from the Mayo web page and another from Very Well Health
https://www.mayoclinic.org/diseases-conditions/hashimotos-disease/symptoms-causes/syc-20351855
https://www.verywellhealth.com/thyroid-disease-and-chronic-hives-urticaria-3232750
Have you been checked for Hashimoto’s Disease?

I have polycythemia Vera and was diagnosed in May of 2023. I had the itching 3 years before my blood counts showed a problem, therefore they didn’t test me but kept sending me to dermatologist which diagnosed it as puritis. I now find antihistamines help the most.