Yes, I noticed that also. I actually had my entire colon taken out, I had a complete proctocolectomy 13 years ago. This cancer now is on my small intestine. They did an MRI and it's only in that one small area, nowhere else!! But I feel like a ticking time bomb some days . I have a really rare genetic disorder called Lynch Syndrome which causes cancers, the main one is colon cancer. In women it can cause cervical cancer so I had to have a complete hysterectomy when I was 38. But this intestinal cancer that I have is definitely related to the Lynch syndrome. They only found the Mac because I started coughing a blood January 5th and went to the ER. At that time I had a mass in my lung, so they thought that was cancer and did a bronchoscopy and started poking around in there and then cleaned it all out put me on antibiotics for the pneumonia, and then the next CT scan it was a cavity. But I appreciate you letting me know about your friends that have also had some surgeries and have the Mac because that's one thing I'm really worried about is how they treat that and treat the cancer at the same time!! Thank you for the information. It just helps so much to know that there is other people that have gone through the same things, and are doing well!
Angela