Yes, I’ve had pudental nerve entrapment on the left side only since about 2010-12. I cannot sit with comfort. They first diagnosed it as sacroiliac joint syndrome but none of the cortisone injections ever worked at all. Then I had an EMG test that was positive for PNE on the left side only. I don’t think they do that test anymore. So I have extreme burning pain in the left perineal area much of the time. I also have low back pain, left hip pain (though several doctors say the hip joint is ok) and tailbone pain. The good news is, I had the Nevro Spinal Cord Stimulator trial recently. It was for my degenerative disc disease and back pain. But it did help the PNE as well as all the other back pain. I will be getting permanent placement of the stimulator soon. However, I am not getting my hopes up yet as people on here have reported mixed results after permanent placement. On the hopeful side, my friend has had the Boston Scientific stimulator for about 4/5 years and says she probably couldn’t get out of bed without it. So here’s hoping! Gayle

I have had PN for about two years. It started out with a cold, cold cold feet but now my feet are cold one day and burning up the next. Anyone else have these mixed symptoms? Appreciate all the info that I get on connect.
Peace to all, Bcool123

Hello @moverland. A decade worth of searching for relief is quite a long time. I am glad to hear you have an upcoming appointment to keep exploring your options for some much needed relief.

I wanted to bring you into an existing discussion on this same topic already happening, so you will notice that I have moved your post here:
- Pudendal Nerve Entrapment/Neuropathy/Damage: https://connect.mayoclinic.org/discussion/pudendal-nerve-entrapmentneuropathydamage/

I did this so you could reply to @gaylerenee and @bcool123 who have joined you already.

Is your upcoming appointment with a provider at the same hospital that you've been seen at the last 10 or so years or is this a new location?

This is a monster. I sat on a donut for 14-1/2 years and the only thing that finally got rid of it was an anti-seizure medicine for an unrelated matter. Ask your doctor.