← Return to Doctor Recommendations for Chronic active Epstein–Barr virus (CAEBV)

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@chistiania

Dear @baileygjcar,
Your worried post is the first thing l read this morning, opening my laptop. It makes me immediately upset, and l must say that l, unfortunately, know all too well what EBV is and l can say that because of the Epstein-Barr virus, my life changed forever many years ago. Besides, it caused what l today for sure know is the reason for me being terribly ill for the most part of every given year (Chronic Fatigue Syndrome, also known as CFS/ME).
So, for your doctor to be so ignorant and arrogant and dare say to you that "it's not a real thing" ... makes me say ... if it is not a real thing l wish for him to get it today ... (l am NOT a mean person, and l don't exactly go around wishing anything on others), but this careless answer of his to you - a patient who obviously has put her/his trust in him, and is being brushed away in such an arrogant and unacceptable way, is more than l this morning can take.
Please do not feel alone. Do know that EBV unfortunately is all too real and that l am very sorry that you have such a piece of junk as a primary doctor.
All my best to you.

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Replies to "Dear @baileygjcar, Your worried post is the first thing l read this morning, opening my laptop...."

Thank you so much! It can be so isolating when no one around you has been through what you’re going through so sharing your story is so appreciated!