Pins and needles plus vibrations SFN?

Posted by tinatoren @tinatoren, Feb 24, 2023

Hi. I've been suffering from a total body pins and needles or micro vibrating felling that came on in 2 days in December. Plus some jerking in body. I had some pins and needles in legs and seat before but then it spread to entire body including face, gums, tounge etc. I've been trying to find a neurologist since but in the mean time I've been trying to hold on to my sanity and it's getting harder. I have many other symptoms and it could be a systemic disease but I was just wondering if you can have this paresthesia feeling all over body for 3 months before you start getting pain and loss of sensation to show that it is polyneuropathy?
Or do the pins and numbness and pain come together in one limb at the time?
I have something that feels like buzzing, vibrating, pricking everywhere as soon as I relax. I also have twitching in hand, lips, tounge sometimes but it comes and goes. I know some of you suffer horribly with neuropathic pain and I'm ashamed to say that this is so devastating for me but everytime I try and fall asleep I can feel my lips, face and entire body tingling and vibrating and it is such a horrible feeling that I can only sleep a few hours when I'm exhausted . And then I have to wake up to this horror again.Sometimes it takes 24 hours before I fall asleep.
I don't think I can live with this if there is no treatment. It's a 24/7 feeling of being tortured and it's in my whole face too.
I thought maybe in a neuropathy group someone maybe know if there was any medication to quiet down nerve tingling because Im starting to feel that I would rather be dead. Tried benzodiazepam and that does not help at all. Ive been bedridden for a cluster of symptoms for over 9 weeks and I may have weeks to endure before a diagnosis but frankly I don't know that my mind can do it anymore. I know native Americans used to sometime bury enemies in anthills and I'm experiencing a milder version that and how do I get through the next hour??? I'd honestly rather have both my legs sawed off than this. Is there any hope anybody can give me??

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sharka | @sharka | Feb 26, 2023

In reply to @tinatoren "In Sweden." + (show)

You can try to find cannabis prescribing doctor there, even CBD only can be good option to try . Should be ok to get it for chronic pain.
Good luck 🤞
And all those reflux medication have awful side effects, you can try camomile tea with fresh ginger, instead 👍😉

treetop | @treetop | Feb 26, 2023

Just a gentle tip that might help some folks, NO (nitric oxide is vital. It`s in the air you breathe but you have to breathe thru your nose to get it. Mouth breathers are starving their bodies of it. Just long slow deep breaths thru the nose please. So simple to do. Hope it gives some a thought to go on. Treetop

davelobb12 | @davelobb12 | Feb 26, 2023

In reply to @sharka "I do have sometimes at night similar symptoms all over body and after trying a few..." + (show)

Yes medical Cannibas is great for sleeping at night.

tinatoren | @tinatoren | Feb 26, 2023

In reply to @sharka "You can try to find cannabis prescribing doctor there, even CBD only can be good option..." + (show)

Thanks I will try to find some cbd. I tried benzodiazepam and just 2.5mg made everything so much worse when it wore off plus intense head spasms so it seemed to have a rebound effect. Plus my Rosacea went crazy with flushing.

tinatoren | @tinatoren | Feb 26, 2023

In reply to @treetop "Just a gentle tip that might help some folks, NO (nitric oxide is vital. It`s in..." + (show)

Now that is something I didn't know. Because of snoring and weak facial muscles and having to sit up in bed to sleep both for head vibrations and pressure and for reflux since I'm off ppis I end up breathing through my mouth all night and most of the day! I will try breathing through nose when I'm awake 🙂

treetop | @treetop | Feb 26, 2023

Always be certain the Cannabis was grown without Chemicals. Different strains give different affects. If you have nerve problems avoid any kind of any form of Cannabis derived from the SATIVA strain. The INDICA strain produces more of a relaxing, calming, soothing affect, thus can really help with any problem with pain from neuropathy or most any place else.

katcollins | @katcollins | Feb 26, 2023

In reply to @tinatoren "Thank you for telling me. I've hav fibromyalgia and chronic Fattigue for 20 years and never..." + (show)

Have you asked your doctor for a nerve blocker like Gabapentin? It makes a big difference for me.
Kat

tinatoren | @tinatoren | Feb 27, 2023

In reply to @katcollins "Have you asked your doctor for a nerve blocker like Gabapentin? It makes a big difference..." + (show)

No I haven't been diagnosed yet but I will ask fot that when I hopefully get a diagnosis. I went from normal to full body vibrations and cramps in 48 hours although I did have some tingling in legs before.

katcollins | @katcollins | Feb 27, 2023

In reply to @tinatoren "No I haven't been diagnosed yet but I will ask fot that when I hopefully get..." + (show)

I understand. I had the same experience. I went from some tingling and numbness in arms and legs (supposedly from disc herniations) to full body symptoms without any trigger. Keep calling doctors to get in as soon as possible. The medication helps me tremendously. I am also taking B12 supplements that were approved by my Neurologist.
Best of luck!
Kat