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← Return to Hairy Cell Leukemia
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Blood Cancers & Disorders | Last Active: Apr 10, 2023 | Replies (39)
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Thank you! It’s my father who has just been diagnosed with HCL I moved in as his temporary caregiver & trying to get answers on what to expect if he refuses treatment, which is what he’s considering. Has been offered Interferon. Anyone else tried that treatment please?
Replies to "Thank you! It’s my father who has just been diagnosed with HCL I moved in as..."
This sums up my husband's 14 year long experience with HCL. I'm a big fan of alpha interferon!
https://connect.mayoclinic.org/comment/806461/
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Hello @jacg, sorry to hear about your father. I was diagnosed 10 years ago at 58. I had been having my blood watched for a few years. When I was in the hospital for something unrelated, another oncologist did a bone marrow biopsy and diagnosed the HCL. I did 5 days of cladrabine chemo and the HCL remissed for close to 7 years. I've had another 5 days of chemo a year and a half ago with the HCL back in remission. This is a treatable cancer, with hope to see another 15-20 years. I lost some sense of smell and taste the first chemo treatment but I'll trade that for living longer.
Good luck with your father