I am in the process of determining if I have Chronic Eosinophilic Leukemia. My eosinophil count has been 29,000 for 2 years without symptoms. Since December 2022 I have intense itching and rash in large and small patches. Swollen ankles, extreme fatigue and the eosinophil test is 31,000. In the next ten days I will have further labs and possibly an echocardiogram. I hope to have an answer soon because my quality of life has changed significantly.

@loribmt

I've been fighting C.E.L. for almost 23 years now, first symptoms showing late 2003, taking until October 2009 for a diagnosis. Spent 6 years feeling like I'd slept in a bed with poison ivy sheets, poison oak pillow-case and poison sumac pajamas, while having a 3rd degree sunburn over 90% of my body and chicken-pox all at the same time, 24x7x365.25... By the time of diagnosis, my eosinophil count was over 27k. Heart infiltration, optic nerve, every joint in my body. Also exacerbated my type 2 diabetes as eosinophils bind to insulin receptors. 16 years after starting Gleevec, I'm still kicking, albeit, not very high. I now suffer from CIDP as my compromised immune system started attacking my nervous system.