Connect
← Return to Others out there with CEL (Chronic Eosinophilic Leukemia)?
Discussion
Others out there with CEL (Chronic Eosinophilic Leukemia)?
Blood Cancers & Disorders | Last Active: May 5 9:15am | Replies (23)Comment receiving replies
Good morning, @johnra I’ve scoured our forum for other members who have Chronic Eosinophilic Leukemia so that I could help connect you. You’re a rare bird!
This is a great idea to start a new discussion about CEL. Be patient, it may take a little time for people to start trickling into the forum. But I’m a firm believer of “If you build it, they will come.” ☺️
It’s encouraging to hear you’re maintaining status quo after having this for 6 years. How were you finally diagnosed 3 years after the onset? What were your symptoms?
Replies to "Good morning, @johnra I’ve scoured our forum for other members who have Chronic Eosinophilic Leukemia so..."
I am in the process of determining if I have Chronic Eosinophilic Leukemia. My eosinophil count has been 29,000 for 2 years without symptoms. Since December 2022 I have intense itching and rash in large and small patches. Swollen ankles, extreme fatigue and the eosinophil test is 31,000. In the next ten days I will have further labs and possibly an echocardiogram. I hope to have an answer soon because my quality of life has changed significantly.
Connect
Hi Lori,
Can you please help find posts or a group that has been diagnosed with cancer and used a Philip's CPAP machine? I'm not having much luck. Thank you!