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Hairy Cell Leukemia

Blood Cancers & Disorders | Last Active: Apr 10, 2023 | Replies (39)
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@jacg

I’m new to this site and wonder if anyone is affected by hairy cell leukemia. If so, I’d love to hear from you.

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Replies to "I’m new to this site and wonder if anyone is affected by hairy cell leukemia. If..."
Colleen Young, Connect Director | @colleenyoung | Feb 26, 2023

Welcome @jacg. I moved your message to the discussion where members are talking about hairy cell leukemia here:
- Hairy Cell Leukemia https://connect.mayoclinic.org/discussion/hairy-cell-leukemia/

I did this so you can easily connect with other members who have experienc with HCL like @tallyteresa, @phyreguy79, @shing, @rllarocca and more.

Jacg, is this a new diagnosis for you? How are you doing?

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ptannie | @ptannie | Feb 27, 2023

I was diagnosed with HCL last November and started treatment with cladribine shortly thereafter. I had a break for 6 weeks due to a significant rash. Tomorrow I’ll have my 7th of 8 weekly rituximab infusions. My blood counts are approaching normal levels now and the side effects bearable. I’m in Nashville TN and have virtually met and received support from others with HCL on this support group https://m.facebook.com/groups/hairycellleukemiasupport/?ref=share&mibextid=l066kq. Also you’ll find great educational information on hairycellleukemia.org.

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