← Return to Locator clips placed during lumpectomy for radiation therapy

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@bjjoyce1

My dr's do not understand mast cell. or my allergies in Ohio. I spend days trying to find medicine that doesn't contain any form of soy. 92% of all medicine contains a form of soy/Monsanto' gmo. I go ana , angioedema , or get a form of boils and thin skin depending on the form of soy. I react worse to the soybean oil and nasal smells which put me into anaphylaxis - feels like a ball in my throat and i get red like a hot iron was placed on my skin. ER will give me an IV of Benadryl and Pepsid. I have learned how to keep myself out of ER. My allergist is in Charlottesville VA . Which has helped me stabilize reactions. After my RLN was damaged from the removal of my thyroid, 2 para thyroid and a hyper hypo nodules, then reattachment of another para thyroid I developed allergies to all environmental. Drs at Baptist Hospital in JAX helped me get 75% of my voice back in 2015. Porcine thyroid medicine was able to replace the levothyroxine I was allergic . Then in Nov 2020 a Titanium marker was placed in my right breast during a biopsy, which was ok. I had atrophy at the 9 o"clock location on my right breast. I started having perfused sweating and could no longer cut my grass. I was trying to get the t. marker removed, when it was found I had breast cancer. It started with a bad mammo in Dec 2022,Surgery Feb 15 2023. The hospitals use my medicine when ever I'm in the hospital. I have compound med's or know what does not have soy. It takes days for me to contact pharmaceuticals to learn inactive ingredient derivatives., and be able to get the medicine. Many tines they have no idea what some ingredients are derived from because they sub contract it out. So a variable is assumed to be soy, or it is not on a clean line and can contain cross contamination. If the product is really free from soy, then many times the cross will not affect me badly. The FDA allows a small % of soy oil to be used and not call an ingredient. i.e. many can foods have the cans lined in soy, which is never listed as an ingredient. I can not have ace or arb's because I swell. The only pain med I can take is Tylenol m and that must be checked for soy , Soy has 72 names. So many Dr's and hospitals want to use Propofol as an anesthesia , which is soybean. Thank You. I spoke with someone at Mayo which told me they would give the cocktail prior surgery. I gave them my Benadryl , and they added the prednisone and Zyrtec. WE knew the 2 didn't contain soy, but the Zyrtec would have it. I told her it would be ok bec the other two would prevent a severe reaction. It worked great and I didn't have any reaction. They put me into twilight sleep Etomidate, versed, lidocaine, and a small amount of fentanyl. I was worried about the Fentanyl bec my mother reacted to the patch by having water pour out her pores on her legs. All worked out, except i am worried about any metal being in my body. My gums swell up and down from my mouth practical. I heard it was the Nichol which is generally in metal implants which cause the reactions.

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Replies to "My dr's do not understand mast cell. or my allergies in Ohio. I spend days trying..."

Hi @bjjoyce1

I have different mast cell problems so I understood what you were talking about. Allergic reactions effect my eyes and eye lids.

I am allergic to the yellow dye or something else in Fluorescein for eye dialation.
They have to use a different one for me. I get eye lid swelling and red eye.

They may have used it when I had cataract surgery as I then had problems aferwards too.

Since then, I have had allergic reactions to some meds.

My daughter is allergic to soy.
Both she and I had an allergic reaction to the pre-surgery cleaning solution, chlorhexidine.

We both developed large bumps all along the surgical stitching line as we both had reactions to the self-dissolving stitches used. My body tried to encapsule these stitches.

I would ask if now they could do a skin test prior to surgery of the materials used for stitching and anything used to sterilize the stitching material.
If you have any silicon allergies,
I would inquire if they used bio zorb with a lumpectomy to help area fill in where the tumor was removed. The titanium pieces are attached to the ends of this. The bio zorb is self-dissolving.

Most likely the titanium was placed as future markers to show up on mammograms too. Ask your Dr.