← Return to Essential Thrombocythemia: Looking for information and support

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@cattl

Hello all, my mom just got diagnosed ET, and I found this forum as I was researching online. She is 65 and the doctor put her on Hydrea 1000mg daily which helped lower her platelet count from 1,100,000 to about 300,000. Now she is on a lower dose 500mg daily. I saw several mentions on the forum that they had no side effects while taking Hydrea, but my mom’s hair is falling out and her nails turned black. I am wondering if anyone is going through the same. Best wishes to all.

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Replies to "Hello all, my mom just got diagnosed ET, and I found this forum as I was..."

I had hair thinning and some black streaks in my nails on HU. Nail discoloration and hair thinning are definitely things I have heard other HU patients talk about, too. Your mom might want to ask the doc if these symptoms will ease up with the lower dose of HU. My hair thinning stopped and nail streaks grew out over time.