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Most effective way to administer IVIG
Blood Cancers & Disorders | Last Active: Feb 15 8:13am | Replies (8)Comment receiving replies
I do question how the IVIG treatments are being administered. When I go in for a 3 or 4 month check with my oncologist, my Ig #’s are always way below normal. Then, I take 4 infusions, two per week for two weeks. I have heard that other people take one treatment each month. The nurses always question me about the the way I am getting them and have commented that most people get one per month. I would like to hear from people who get the IVIG treatments, if they are getting blood work results back within normal range, and how they are being administered. Thanks.
Replies to "I do question how the IVIG treatments are being administered. When I go in for a..."
Hi @lucy84
I have MCL stage 2A which was diagnosed last April. It's taken an indolent course so far and I have been on watch & wait with it. However, I also was diagnosed with CIDP and my neurologist started me on a four month trial of IVIG last October. I received the loading dose of five consecutive days followed by twice weekly infusions. I just had a new EMG which didn't show I responded to the treatment. My bloodwork was also affected by the IVIG. Everyone's treatment is different; some get IVIG 1x every 3 weeks, some 1x monthly, some 1x weekly and, some, like myself, receive it 2x/week. Hope that helps.
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Hello @lucy84
The regiment I was on after Car T was, once the levels fell below minimum, I would receive one treatment once a month for four consecutive months. (Regardless how the levels changed) My blood would be checked on a monthly basis and the treatment would start again once the levels dropped below the tolerance level. This went on for about 2 years after cancer treatment. My blood is still well below minimum levels however the treatments have been discontinued as I do not get infections. Treatments could start again if infections occur.
I had a reaction to the infusions and had to take take pre-meds before the infusions. Do you have a reaction?