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Diagnosed with moderate/severe poly neuropathy: sensory motor

Posted by windsorchris @windsorchris, Jul 10, 2022

Hi,

Formally diagnosed with polyneuropathy 4 years ago. recent nerve conduction test indicated moderate-severe condition. To date, numb toes, feet, ankles toward knees. It is progressing but still able to do most things including walking, and swimming with modifications i.e. leg floats. I am 74. Would appreciate information, comments and suggestions from those with similar diagnosis. One thing.....HOKA shoes are the best with a Dr. Scholls gel insert; like walking on a cloud and a huge help. I do not mention this condition to friends and just limited report to grown children believing when the time comes and it is obvious that dad has a medical problem i.e. stumbling etc. and I do not want to be pitied which changes the fundamentals of a relationship. Despite some daily difficulties I feel like the luckiest man alive having lived to age 75!

Interested in more discussions like this? Go to the Neuropathy Support Group.

landoflakes | @landoflakes | Jul 19, 2022
In reply to @duquer "I just wanted to share with you, that I had some of the same pain symptoms...." + (show)
@duquer

I just wanted to share with you, that I had some of the same pain symptoms. My diagnosis is severe axonal sensorimotor polyneuropathy. It took me six years to this treatment that actually works! If you would like to know more about the RST Sanexas treatment, I would gladly send you my story. Let me know. Wish you the best!

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I have Polyneuropathy and have had it for 6 years. I have been asked to be part of a clinical trial and have not made up my mind yet. This trial uses TENS device. Have you heard anything about this? Thanks you.
Mary Ann Malewski
Patient
Beebe Medical Hospital
Tunnel Cancer Center

REPLY
1 reply
duquer | @duquer | Jul 19, 2022
In reply to @landoflakes "I have Polyneuropathy and have had it for 6 years. I have been asked to be..." + (show)
@landoflakes

I have Polyneuropathy and have had it for 6 years. I have been asked to be part of a clinical trial and have not made up my mind yet. This trial uses TENS device. Have you heard anything about this? Thanks you.
Mary Ann Malewski
Patient
Beebe Medical Hospital
Tunnel Cancer Center

Jump to this post

The Sanexas treatment machine looks like a big TENS unit, but it is much more than that! A TENS machine is like a X-ray and RST SANEXAS neoGEN device is like getting a MRI. More powerful frequencies and over 20 different treatment programs designed for acute and chronic painful conditions.
It has lots of electrodes that send electrical impulses through the skin with the goal of regrowing nerves. It was not at all painful, just a soothing electrical massage to my arms and legs.

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1 reply
NJ Ed | @njed | Jul 22, 2022

To - windsorchris - I have similar going on with me, sensorimotor neuropathy, slowly progressing towards both knees, now about 6 inches below, in your original posting, the HOKA shoes caught my attention. Do you have drop foot associated with your PN? Ed

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pamelaz | @pamelaz | Feb 25, 2023

How bad is your neuropathy? Mine hurts from my toes up to my buttocks

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1 reply
stevek1963 | @stevek1963 | Feb 26, 2023
In reply to @pamelaz "How bad is your neuropathy? Mine hurts from my toes up to my buttocks" + (show)
@pamelaz

How bad is your neuropathy? Mine hurts from my toes up to my buttocks

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Mine was the same way. My neurologist started me on medication that took all the pain away.

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2 replies
govisri | @govisri | Feb 27, 2023
In reply to @stevek1963 "Mine was the same way. My neurologist started me on medication that took all the pain..." + (show)
@stevek1963

Mine was the same way. My neurologist started me on medication that took all the pain away.

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Do you please tell us what those medications are?

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lewin | @lewin | Feb 27, 2023
In reply to @duquer "The Sanexas treatment machine looks like a big TENS unit, but it is much more than..." + (show)
@duquer

The Sanexas treatment machine looks like a big TENS unit, but it is much more than that! A TENS machine is like a X-ray and RST SANEXAS neoGEN device is like getting a MRI. More powerful frequencies and over 20 different treatment programs designed for acute and chronic painful conditions.
It has lots of electrodes that send electrical impulses through the skin with the goal of regrowing nerves. It was not at all painful, just a soothing electrical massage to my arms and legs.

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Was this treatment effective and how can one find out more about it and where it is offered?

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1 reply
duquer | @duquer | Feb 27, 2023
In reply to @lewin "Was this treatment effective and how can one find out more about it and where it..." + (show)
@lewin

Was this treatment effective and how can one find out more about it and where it is offered?

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It was very helpful to me. My neuropathy pain went from 100% down to 5%. Have you had a chance to read my story here.?

For more information about my Sanexas treatments, and their locations, You may call them at 702-315-2999 or 866-SANEXAS. (866-726-3927), and ask to talk to Debbie Hansen. Remember Everyone is different and treatment protocols may vary some due to their length of illness and damage to nerves. They are are there to help answer any your questions or concerns. Please let them know that I gave you this information so that your questions will be answered promptly. For the record, I have never been employed nor am I receiving any financial compensation from Sanexas.
RSTSANEXAS.COM

REPLY
pamelaz | @pamelaz | Feb 27, 2023
In reply to @stevek1963 "Mine was the same way. My neurologist started me on medication that took all the pain..." + (show)
@stevek1963

Mine was the same way. My neurologist started me on medication that took all the pain away.

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What was the name of the medicine?

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pamelaz | @pamelaz | Feb 27, 2023

What was the nay of the medicine?

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