← Return to Hair loss after transplant, probably Tacrolimus: Anyone change meds?

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@blbird33

yani2023, Maybe I need hair wraps. I think they are fabric wrapped around your hair at night. Correct me if I am wrong. I will find one or make one and see if it helps. Thanks for the idea. Just had Tacro dose increased at now my 4th month Post Transplant due to Tacro levels getting too low. I also had white blood cell level go too low as well. Anyone else have these decrease? They reduced my Myfortic and increased my Tacro. I really have to work at calming down during the day as the Tacro causes more tremors and anxiety shaking. But I love my new kidney too. I am grateful and some days drink camomille tea to help calm me. One doc told me to increase the Metoprolol to help reduce tremors. Have a very good day and thank you. Glad to hear from you, BB

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Replies to "yani2023, Maybe I need hair wraps. I think they are fabric wrapped around your hair at..."

I had a kidney transplant 6 months ago (01/23) and I noticed significant hair loss start around the 4 month mark post transplant. Now at 6 month post , the hair loss is pretty bad, I was told by transplant team to use Biotin to see if it helps. Around the same time (3-4 months post op) I had extremely low white cell counts and they put me on Neupogen injections ( 1 per week /for 4 weeks) u don’t t know if this had anything to do with hair loss but that’s when I started to notice it. I’m also on ENVARSUS XR (4mg ) , prednisone (5mg) and Mycophenolate (cellcept 100mg /2x day) honestly my body has not taken ENVARSUS / Tacro well at all , I’ve had really bad tremors and headaches everyday so that’s when they switched me to ENVARSUS XR which helped a little with tremors and for the headache they put me on Propranolol (10mg/ 2x day) that has helped with the headaches. I’m very grateful for my new kidney but it has been challenging at times with the meds I am on. I don’t feel my best yet but I’m hopeful I will eventually. Best of luck to everyone