← Return to Scar tissue in throat caused by radiation and chemo treatment

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@toony

Hi, I know exactly what you're saying.. they want to treat us but, dont want to deal with what happens later. Im with you.i did get the heart surgery to replace every valve in my heart. Now with all of the scar tissue in my neck I need the cartoid arteries fixed and no doctor will touch me. So that's why I'm headed to mayo clinic. But, I will say if they would have been honest with me I would of just let the cancer take its course instead of having all these other medical issues. And if mayo clinic can't help I will die from scar tissue on my cartroid arteries.

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Replies to "Hi, I know exactly what you're saying.. they want to treat us but, dont want to..."

Oh my 🥺🥺. This is why I fight and fight and had to change cardio's like three times because they didn't want to talk about anything else but the surgery !! I walk in and say "it's off the table. Don't talk about the heart surgery cos it ain't gonna happen." I was FaceTiming with the surgeon and as I talked about how bad I scar internally, I saw his shoulder move and he glanced down and I knew he was writing lol and then he said even if i wanted it in the future, he wouldn't do it. He's no fool. I saved HIM lol. Inwas told by a radiologist that the scarring in my neck from thyroidectomy left thick ropey scarring in my bed. 11 years ago and I still suffer. I doctor myself. I know myself. The steroid increased my wbc and pushed me over the edge of bad hypothyroidism. I need to start steroid session again as the swelling is back (I'm pretty sure it's lupus 🙁) so I already added another thyroid pill to my schedule because I went out of control and it was awful. If doctors won't treat me I will treat myself. I've had everything for so long. Now husband is sick. I hope it's not Covid because between the leukemia and the steroids, my immune system is shot (although I sort of feel that my rise in WBC is helping fight the cold or Covid off, or whatever it is.). I hope you get a positive answer from Mayo. Remember the ultimate decision will lie with you, regarding the possible outcome - being realistic, I'm sorry. Make the choice yours and choose the best doctor and what will be, will be. ❤️😊👍🏻🤞🏻