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DiscussionScar tissue in throat caused by radiation and chemo treatment
Head & Neck Cancer | Last Active: Feb 8 3:22pm | Replies (101)Comment receiving replies
Replies to "Hi, I know exactly what you're saying.. they want to treat us but, dont want to..."
Oh my 🥺🥺. This is why I fight and fight and had to change cardio's like three times because they didn't want to talk about anything else but the surgery !! I walk in and say "it's off the table. Don't talk about the heart surgery cos it ain't gonna happen." I was FaceTiming with the surgeon and as I talked about how bad I scar internally, I saw his shoulder move and he glanced down and I knew he was writing lol and then he said even if i wanted it in the future, he wouldn't do it. He's no fool. I saved HIM lol. Inwas told by a radiologist that the scarring in my neck from thyroidectomy left thick ropey scarring in my bed. 11 years ago and I still suffer. I doctor myself. I know myself. The steroid increased my wbc and pushed me over the edge of bad hypothyroidism. I need to start steroid session again as the swelling is back (I'm pretty sure it's lupus 🙁) so I already added another thyroid pill to my schedule because I went out of control and it was awful. If doctors won't treat me I will treat myself. I've had everything for so long. Now husband is sick. I hope it's not Covid because between the leukemia and the steroids, my immune system is shot (although I sort of feel that my rise in WBC is helping fight the cold or Covid off, or whatever it is.). I hope you get a positive answer from Mayo. Remember the ultimate decision will lie with you, regarding the possible outcome - being realistic, I'm sorry. Make the choice yours and choose the best doctor and what will be, will be. ❤️😊👍🏻🤞🏻