← Return to CLL leukemia: Just diagnosed, what can be done?

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@loribmt

Hi @tatayababa, I can feel your anxiety growing so I hope I can help you out a little.
It really is confusing as to why some people with the same blood cancer can have symptoms while others feel nothing. A lot depends on the progression of the disease. CLL/SLL are essential the same disease with the primary location of most of the leukemic cells being the difference…either in the blood/lymph nodes or in the bone marrow. It is generally very slow to progress over years and often found randomly with a routine exam/blood work appointment.

Blood cancers start in the marrow when something triggers the immune system to run amuck with an overproduction of one portion of the blood product, whether it’s red or white blood cells, plasma or platelets. When disease is early, there may be no symptoms at all because the impact is small.
With a blood cancer there are no tumors but lymph glands can become enlarged, causing discomfort. There can be pain in joints and bones as the overabundance of blood cells crowd out the cramped chambers inside the marrow…eventually spilling out into the blood stream. Organs can become affected such as the spleen causing pain. There can be fevers, exhaustion, night sweats, etc, as the leukemic cells over take the normal production of red blood cells which carry oxygen through our body and the immune system responds to the inflammation. But again, not everyone feels any or all of these symptoms depending on the slow progression of the disease.
Not sure if I’ve given you this article previously but it’s very well done in explaining CLL/SLL
https://www.healthline.com/health/cll/chronic-lymphocytic-leukemia-symptoms
I know this is all new to you and frightening. But you have no symptoms so you are most likely very early in the game and this is a treatable condition. This isn’t the end of your story! I encourage you not to compare yourself with anyone else’s experience because every single person is different. It’s great to connect with other people with the same disease but as you’ve already seen, no two stories are the same, even with the same diagnosis.
I went through the same thing with my AML…I’ve met many people over the past 4 years with AML and only 2 have had my exact mutations and symptoms. We have to be really cautious to not speculate on those pesky what-ifs. Because most of the time what we conjure up is worse than the reality. ☺️
March 10th feels like a long way off…2 weeks from today… you’re going to get through each day because nothing has changed! You’ve had this condition for some time already…you’re just waiting for a few more answers to the puzzle. Finding the answer is a good thing! It’s the waiting that’s hard!
Are you in the heavy snow belt or are you out enjoying so fresh spring air somewhere?

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Replies to "Hi @tatayababa, I can feel your anxiety growing so I hope I can help you out..."

In Canada lol so yes heavy snow belt ; i have a little maltese so i am out 3/4 times a day; we had a peak at spring abit ago and was out alot longer each time; these cold days not so much; you are right on all accts; i am trying to tell myself this everyday