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Pretty sure it is RLS

Brain & Nervous System | Last Active: Mar 7, 2023 | Replies (25)
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@ccstahl

Yes, neurologist did nerve and muscle conductivity tests and all normal. In the last 5 months I have had just about every blood test nerve test and other test and if anyone looked at the the results you would think I am a very healthy guy. But something is certainly wrong. I started gabupenton about three weeks ago and hit helps but still have horrid tingling everywhere but allow me some sleep.

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Replies to "Yes, neurologist did nerve and muscle conductivity tests and all normal. In the last 5 months..."
Merry, Alumni Mentor | @merpreb | Feb 24, 2023

I never had any testing. My neurologist actually asked my husband if my legs moved a lot when we are in bed and Dave said yes. The rest is history. If I don't squelch the feeling of something crawling around in my legs it drives me insane. I have to move them to stop the feeling. Of course, it comes right back as soon as they're still. Also, I never used to be able to sit still. If I was flying I drove the person nuts to me for changing positions so much. Now it's not a problem.

I am a huge proponent of seeking a second opinion if something is still off. This is your body and if something is wrong, you know it. Have you told the dr. tha the gab isn't really working? Maybe it's the wrong dose?

So, what will you do now? How about a second opinion?

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