ACNES, Abdominal Cutaneous Nerve Entrapment Syndrome

I will bring this up to my GI!!

Can you please provide the name and location of the pain clinic you found the knows about ACNES?

The surgeon at St Joseph’s Medical Center in Phoenix is Dr Thomas Gillespie. He performed Robotic Laparoscopic Surgery cutting my T8, T9 & T10 abdominal nerves. Went home same day cured. Call his office, They will guide you. Jeff

Good morning Jeff,
I have a question for you.
How was your surgeon able to isolate which nerves to cut? Where was the location of your pain?
My 1st procedure having the intercostal nerve blocks at different nerve locations along my right side of the underneath of my ribs around to my back is this Tuesday, the 28th.
This will be a diagnostic procedure to isolate the nerve/nerves. They use anesthetic for the Nerve Blocks. If this procedure is successful, then Radio Frequency Waves will be used to sever the nerves at each point.
I'll keep ya'll posted on my progress!
My procedure is being done at UF Pain Management Gainesville.
Dr. Fagiro is an anetheseoligst pain management doctor.
Please say a pray for me.
God Bless 🙌
Victoria Sarosy

Hi Victoria,The first doctor to identify it being ACNES was an anesthesiologist at pain center who injected lidocaine trigger point shots in the area just below the right rib cage.  That brought temporary relief (day or so) but pain returned.  The surgeon, Dr Gillespie, then examined me including the Carnett test.  Dr Gillespie then robotic laparoscopically went in and saw T9 was inflamed with less inflammation for T8 and T10 so correctly severed all three.  Went home from hospital late afternoon sore but cured.  Been 18 months zero pain.

Dr Gillespie is a top surgeon at St Joseph's , not an anesthesiologist.  You can see almost exactly how it is performed by going on YouTube entering Robotic Laparoscopic Hernia procedure.  Same area.My prayers are with you,Jeff 

Hi Victoria,
I saw your post about using Radio Frequency Waves to sever the nerves at each point. I was curious to see how it went. I wonder if this is similar to Dr. Gillespie's procedure to sever nerves T8, T9 and T10?

I've had this lower left abdominal intractable pain for 4 years, and have been working with a pain management physician. I've had several different injections over this time, none of them worked beyond the first few hours. When the lidocaine wore off, the pain was back beyond belief. The last trial was an implanted peripheral nerve stimulator which also didn't help much and required me to wear a "patch" on my abdomen to hold the receiver. I do not want the expense or bother of that for less than 50% relief! My next appointment with this physician is mid-April and he said he has one more potention treatment to discuss with me. I don't know what it is yet, but I am going to raise the option of neurectomy. I want this nerve out and this awful episode of my life over! I can't exercise, not even walk at all, because any activity aggravates the nerve(s). I can't sleep on my left side OR right side, because I always feel the pain. I need help! Please tell me I should approach Dr. Gillespie and try to discuss this with him.

Of course you should. He fully understands ACNES. Dr Gillespie cut my t8, t9 & t10 nerves robotic laparoscopally. Went home same day cured. He is a great surgeon.

Thank you. I've had so many treatments that were unsuccessful. It's scary to think that severing the nerves will work, but I just can't go on like this. I will work up the nerve to contact Dr. Gillespie. I live in the midwest, so would have to work out going to Phoenix to see him.

@losinghope27 Did you have Radio Frequency Ablation, and if so did it help? Thank you.