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Strange neurological symptoms - myoclonic jerks

Brain & Nervous System | Last Active: Feb 23, 2023 | Replies (25)
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@tinatoren

Thanks for your encouragement! I'm trying to hang in there but it is so hard. I guess it is just to try and get through the next hour and then the next, hoping for those couple of descent hours here and there when I have the strength to write letters to best describe my symptoms to doctors and to keep fighting to get access to a neurologist somewhere.

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Replies to "Thanks for your encouragement! I'm trying to hang in there but it is so hard. I..."
law59 | @law59 | Feb 23, 2023

Dont know your healthcare system but hopeful you may be able to reach out for a social worker thru member service/outreach who can assist in all your needs and direct possible route to alternative specialist care as I was gratefully able to have phone appt with one of only 10 limited post covid doctors throughout my whole healthcare system. Day by day and dont loose hope when longer timeframe to wait for care as so many of us need their limited resources🙃

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